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Vee Best says

December 4, 2015 at 12:55 am

I read the article from the mother who was learning to cope with her daughter’s mental illness. First off, there is too much stigma with the words mental illness, because in reality the disease is really a brain disorder. Once it is identified and discussed as a brain disorder, there is much more compassion. Don’t Veer off into the negative misunderstandings that others have. Change their attitudes and reeducate them as well as oneself to the brain disorder classifications. I say this because once others hear the comments and the definitions of brain disorders, then there is much more empathy. I know…I have a daughter that has several brain disorders. Read read read all that you can. Keep a journal of her conditions, her actions. Why not home school her? Maybe you can get the school district to assign a teacher to give home instructions. The kind of after school classroom. My daughter went thru all the educational levels, even went to a crisis center in southern Utah. Unfortunately, at the time, they were not educated enough to make a precise diagnosis. What we know now is not what she was diagnosed as having, but she still has a brain disorder. Get involved with the government programs, get SSI, Medicaid so they can pay for medications and therapy and her other needs. Keep every and all documentations which describes your daughter’s illness. It will help when it comes time to justify why she needs SSI and other benefits. I have used the system because it is a legitimate need, not like some people who use food stamps and buy steak and have gold rings on every finger and artificial nails and fancy braiding. I understand your frustration and pain. Our daughter still lives with us and we are retired, and she is 28 y o. I cannot ever imagine her pain, what is going on in her head…and so with that I try to be patient and realize that she didn’t ask to have these limitations. It isn’t really like cancer, although there is no cure and there will never be any remission from her disease. I could say more, but let it suffice with I understand what this mother is going thru, as she has described what I/ we go thru daily.

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Vee Best says

December 4, 2015 at 12:55 am

I read the article from the mother who was learning to cope with her daughter’s mental illness. First off, there is too much stigma with the words mental illness, because in reality the disease is really a brain disorder. Once it is identified and discussed as a brain disorder, there is much more compassion. Don’t Veer off into the negative misunderstandings that others have. Change their attitudes and reeducate them as well as oneself to the brain disorder classifications. I say this because once others hear the comments and the definitions of brain disorders, then there is much more empathy. I know…I have a daughter that has several brain disorders. Read read read all that you can. Keep a journal of her conditions, her actions. Why not home school her? Maybe you can get the school district to assign a teacher to give home instructions. The kind of after school classroom. My daughter went thru all the educational levels, even went to a crisis center in southern Utah. Unfortunately, at the time, they were not educated enough to make a precise diagnosis. What we know now is not what she was diagnosed as having, but she still has a brain disorder. Get involved with the government programs, get SSI, Medicaid so they can pay for medications and therapy and her other needs. Keep every and all documentations which describes your daughter’s illness. It will help when it comes time to justify why she needs SSI and other benefits. I have used the system because it is a legitimate need, not like some people who use food stamps and buy steak and have gold rings on every finger and artificial nails and fancy braiding. I understand your frustration and pain. Our daughter still lives with us and we are retired, and she is 28 y o. I cannot ever imagine her pain, what is going on in her head…and so with that I try to be patient and realize that she didn’t ask to have these limitations. It isn’t really like cancer, although there is no cure and there will never be any remission from her disease. I could say more, but let it suffice with I understand what this mother is going thru, as she has described what I/ we go thru daily.

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